Presentation Description
Institution: Rwanda
The aim of this workshop is to teach a practical guide developed in Rwanda to understand the language of suffering expressed by patients’ families to optimize communication at end-of-life care.
We observed and described the behavior of more than seven hundred meetings of healthcare staff with family members and patient caregivers in hospitals, hospices, and at home.
We developed a framework called “Safari,” which means “Journey” in Swahili, based on a Rwandan social-cultural approach to decode the language of suffering from families and caregivers during family meetings. Twelve animal archetypes were used to describe families’ suffering behaviors, language, and expectations. The framework has helped healthcare providers improve their understanding of and communication with families.
Presenters
Authors
Authors
Dr Christian Ntizimira - African Center for Research on End-of-Life Care , Prof. Deo Mbonyinkebe - Rwanda Academy of Sciences , Dr Mary Dunne - Standford University , Dr Elissa Campbell - Palliative Care WA