ePoster
Presentation Description
Institution: Sydney Local Health District - New South Wales, Australia
Aim: The aim of the study was to understand the experience of people bereaved in the LHD. This poster aims to reflect on lessons learned regarding participant recruitment and engagement.
Methods: The multi method protocol comprised an online survey and qualitative interviews. Invitations were mailed to the Next of Kin of adult patients who died in the LHD in the previous 2-15 months. A QR code took participants to the online survey, on completion of which participants could enter contact details offering to undertake an interview. Interviews were recorded, transcribed and analysed with a thematic analysis approach. Survey results analysed using descriptive statistics.
Findings/Lessons learned: Use of a postal invitation conveyed respect to participants, though raised logistical challenges and sustainability concerns given the large volume of letters to send. Engagement with volunteers ensured the success of the mail out process. Feedback was received that use of QR code to complete the survey on a smart phone may have limited open text responses. Some participants preferred to have the survey link provided to complete on a computer, or over the phone with a research officer. An SMS reminder was an effective means of increasing the response rate. An unexpectedly high number of participants offered to take part in an interview, a planned system to respond to these offers was necessary, including understanding the participant’s hopes in undertaking an interview. Translation of the survey into community languages would have increased accessibility and validity, and could have been possible had more time been available for the total project.
Conclusions: Lessons learned from this project could assist future bereavement projects in participant recruitment, engagement and efficiency of implementation.
Presenters
Authors
Authors
Mr Brendan Myhill - , Dr. Jessica Lee - Concord Centre for Palliative Care, Sydney Local Health District , Mr. Michael Dash - Sydney Local Health District , A/Prof. Ghauri Aggarwal - Concord Centre for Palliative Care, Sydney Local Health District , Ms. Lauren Stewart - Concord Centre for Palliative Care, Sydney Local Health District , A/Prof. Michelle DiGiacomo - IMPACCT (University of Technology Sydney) , Dr. Kristin Kristin - Western Sydney Health District, IMPACCT (University of Technology Sydney) , Mr. Edward Lie - Sydney Local Health District , Ms. Jamie Lee Dring - Royal Prince Alfred Hospital, Sydney Local Health District , Ms. Nancy Huynh - Concord Centre for Palliative Care, Sydney Local Health District , Ms. Ivy Gough - , Dr. Megan Ritchie - Concord Centre for Palliative Care, Sydney Local Health District , Ms. Catherine Taylor - , Dr. Lixin (Lillian) Zhang -