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Presentation Description
Overview:
Little Haven is a community-based palliative care service in Gympie, Queensland. It aims to provide the highest quality of care, support and education for those experiencing or anticipating serious illness and loss. In 2022-2023, a co-designed, mixed-method evaluation was conducted of the Little Haven model of care, identifying it as a ‘citizen organisation’ in the region.
Aim:
To identify the elements of a ‘citizen organisation’, explore their influence upon provision of palliative care services, and consider its transferability to other settings.
Approach:
Multiple data sources included organisational documentation, peer-reviewed publications, grey literature, qualitative enquiry with patients, carers, staff, volunteers, and key stakeholders, and carer surveys. Documentary and literature reviews, thematic analysis and descriptive analysis of survey data were conducted. Synthesis of findings identified principal conclusions.
Findings:
Little Haven is deeply embedded within its community, with structures and processes both derived from community need and informing community awareness. Early admission; provision of responsive, flexible care across 24-hours a day; ongoing bereavement support after patient death; and extensive community engagement are elements of their model of care that illustrate Little Haven’s place as both a provider of services and a citizen organisation in the region. In return for the community’s investment – both social and financial – Little Haven provides holistic, high-standard palliative care, free of cost to patients and families. This symbiotic relationship is key to the transferability of the model of care.
Conclusions:
Partnerships between service providers and communities can attend to holistic care needs of patients and families and the broader social character of the community regarding issues of dying, caregiving, death and grief. Little Haven’s model of care may not be a distinct entity to the regional community in which it has developed. Therefore, Little Haven is a citizen organisation more than simply a service provider.
Little Haven is a community-based palliative care service in Gympie, Queensland. It aims to provide the highest quality of care, support and education for those experiencing or anticipating serious illness and loss. In 2022-2023, a co-designed, mixed-method evaluation was conducted of the Little Haven model of care, identifying it as a ‘citizen organisation’ in the region.
Aim:
To identify the elements of a ‘citizen organisation’, explore their influence upon provision of palliative care services, and consider its transferability to other settings.
Approach:
Multiple data sources included organisational documentation, peer-reviewed publications, grey literature, qualitative enquiry with patients, carers, staff, volunteers, and key stakeholders, and carer surveys. Documentary and literature reviews, thematic analysis and descriptive analysis of survey data were conducted. Synthesis of findings identified principal conclusions.
Findings:
Little Haven is deeply embedded within its community, with structures and processes both derived from community need and informing community awareness. Early admission; provision of responsive, flexible care across 24-hours a day; ongoing bereavement support after patient death; and extensive community engagement are elements of their model of care that illustrate Little Haven’s place as both a provider of services and a citizen organisation in the region. In return for the community’s investment – both social and financial – Little Haven provides holistic, high-standard palliative care, free of cost to patients and families. This symbiotic relationship is key to the transferability of the model of care.
Conclusions:
Partnerships between service providers and communities can attend to holistic care needs of patients and families and the broader social character of the community regarding issues of dying, caregiving, death and grief. Little Haven’s model of care may not be a distinct entity to the regional community in which it has developed. Therefore, Little Haven is a citizen organisation more than simply a service provider.
Presenters
Authors
Authors
Dr John Rosenberg RN PhD - University of the Sunshine Coast , Sue Manton OAM RN - Little Haven Palliative Care
