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Presentation Description
Institution: Palliative Care Australia - ACT, Australia
Background:
Palliative Care Australia (PCA) and Paediatric Palliative Care Australia and New Zealand (PaPCANZ) have been funded for the Paediatric Palliative Care National Action Plan Project.
One activity in the project is to update the critical resource for Paediatric Palliative Care Providers – ‘A practical guide to palliative care in Paediatrics’ also known as “the Green Book.
This book was first developed in 1999, followed by three revisions with the last revision in 2014.
The target audience for the Green Book is health professionals from all sectors who care for an infant, child or young person with a life limiting condition.
Aim:
The aim of the update was to incorporate new content and refresh a number of sections to reflect the latest evidence and best practice.
Methods:
A Clinical Expert Advisory Group (CEAP) was established to provide clinical advice, oversight and coordination of the update. The CEAP met regularly to progress the update and PCA provided secretariat and project management support.
A survey was distributed to health professionals to understand how often the Green Book was used, the preferred format and what information was most useful and required updating.
Authors of previous versions invited to participate in the latest update and additional authors were approached for their expertise.
Results:
A total of 57 authors have participated in the update including peer reviewers. All sections of the Green Book have been updated and informed by literature reviews, First Nations voices and other social[NO(4] changes in Australia. More detail has been included in some sections and a new section has been added on community development.
Conclusions:
The passion and commitment of the CEAP and authors who contributed to the Green Book update cannot be underestimated. The final product which will be available in June 2023 will continue to provide a readily accessible and reliable source of information for health professionals.
Presenters
Authors
Authors
Dr Anthony Herbert - Children's Health Queensland Hospital and Health Service , A/Prof Helen Irving - Children's Health Queensland Hospital and Health Service , Ms Hannah Skipsey - Palliative Care Australia , Ms Nora O'Loughlin - Sydney Children's Hospital Network , Ms Toni Rice - Palliative Care Australia , A/Prof Marianne Phillips - Perth Children's Hospital , Ms Alison McLarty - Children's Health Queensland Hospital and Health Service , Ms Julie Anania - Royal Children's Hospital, Melbourne , Dr Kirsten Ball - Women and Children's Hospital, South Australia
