Consumer and clinician preferences for measuring palliative care

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Consumer and clinician preferences for measuring palliative care quality: A qualitative study

Oral Presentation Concurrent Sessions

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Oral Presentation - Concurrent Sessions

11:30 am

13 September 2023

Level 4 - Room 4.1

Stream 1C | Concurrent Session | Models of care

Presentation Streams

Models of care – implications for the future

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Presentation Description

Institution: Queensland University of Technology - QLD, Australia

Background

There is a global need for improvements in hospital based palliative care. Patient Reported Experience Measures (PREMs) measure care quality from the perspectives of patients and families to inform monitoring and improvement.

Aim

To explore perspectives of patients with palliative care needs, their carers and the clinical team to inform PREM choice and implementation within the hospital context.

Methods

An exploratory qualitative study, using semi-structured interviews and/or focus groups. Recruitment occurred from three wards in a tertiary hospital in metropolitan Queensland. Eligible participants were either: inpatients with palliative care needs (screened using the Supportive and Palliative Care Indicators Tool); carers of these inpatients; clinicians (medical, nursing and allied health); or health service consumer representatives. Interviews and focus groups were audio-recorded, transcribed and analysed using integrated thematic analysis.

Results

Participants included 19 patients, 8 carers, 5 consumer representatives and 10 clinicians. Patients and carers were predominantly born in Australia (n=18; 67%) and with a malignant diagnosis (n=18; 67%). Six themes emerged from the data including: 1. PREMs for people with palliative care needs ought to be tailored to the needs of this population; 2. PREMs should appraise whether the needs of carers have been met as distinct from those of patients; 3. PREMs for inpatients with palliative care needs ought to be easy to use, brief and incorporate space for free text alongside each question. 4. Implementation of PREMs for people with palliative care needs ought to consider who administers these, when and how often; 5. PREM data needs to be specific enough to inform process change and/or care provision; 6. Patients and carers require meaningful feedback to encourage PREM completion.

Conclusions

Patients, carers, consumer representatives and clinicians provide clear advice about important elements informing PREM choice and implementation for the unique needs of inpatients with palliative care needs.

Presenters

Dr Claudia Virdun

Senior Research Fellow

Queensland University of Technology - Brisbane

Authors

Dr Claudia Virdun - Senior Research Fellow, Faculty of Health, Queensland University of Technology; Honorary Fellow, Improving Palliative, Aged and Chronic Care through Clinical Research and Translation (IMPACCT), Faculty of Health, University of Technology Sydney (UTS) , Dr Elise Button - Partnerships Manager, Healthcare Excellence and Innovation, Metro North Hospital and Health Services; Visiting Associate, Centre for Healthcare Transformation, Queensland University of Technology , Professor Jane Phillips - Head, School of Nursing, Faculty of Health, Queensland University of Technology; Emeritus Professor Palliative Nursing, IMPACCT, Faculty of Health, UTS , Distinguished Professor Patsy Yates - Executive Dean and Director, Cancer & Palliative Care Outcomes Centre, School of Nursing, Centre for Healthcare Transformation, Faculty of Health, Queensland University of Technology , Dr Tim Luckett - Senior Lecturer, IMPACCT, Faculty of Health, UTS

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Consumer and clinician preferences for measuring palliative care quality: A qualitative study

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