Background

CarerHelp (carerhelp.com.au) provides online information and resources to Australians caring for someone with an advanced disease. Launched in 2019, over 42,000 people have visited the website to connect with information on diverse carer topics and pathway options from care after diagnosis and across serious illness, though to caring when someone is dying and bereavement. 

 Aims

The aim of this presentation is to explore the most frequently viewed information and resources on the website, thereby improving our understanding of the key information needs of CarerHelp users and to help drive ongoing redevelopment, redesign and diversifications of resources to better reach the needs of carers.  

Methods

Web statistics provide information on which CarerHelp webpages, topics, resources and videos are the most popular with users. A pop-up on the website collects data on who is using the site and what they are looking for.

Results

Visitors most commonly sought information on imminent death and the days following death. Information sought included caring for the dying person, recognising dying, and what to do immediately after the death. Similar patterns were seen in video use.  Of the 125 CarerHelp users completing the online pop-up evaluation, over half were health professionals (n=71) looking for information to give their families or family members who are caring for someone with advanced disease (n=34).  

Conclusions

Usage patterns support the importance of information on caring for someone who is imminently dying.  Post release evaluation can assist in understanding the needs of users and identify future directions for resource development. Thus, targeted implementation activities will continue to assess the usefulness of the resources in practice.