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Oceanic Palliative Care Conference 2023
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Capturing the voices of people with pancreatic cancer: a mixed media methodology to enhance recruitment for an international survey of pancreatic enzyme replacement therapy

Poster Presentation

ePoster

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Presentation Description

Institution: - Select -, New Zealand

Background: Pancreatic cancer is relatively rare and aggressive, with digestion and malabsorption issues often leading to significant weight loss. Recruitment of people with this malignancy into studies can be challenging due to the limited prognosis and changing metabolism. Novel recruitment methods need to be explored so the voice of this population can be captured.

Aim: To present a mixed media methodology employed to investigate pancreatic enzyme replacement therapy utilisation in participants with pancreatic cancer across Australia and Aotearoa New Zealand (ANZ).

Methods: A detailed description of a mixed media approach utilised to identify and recruit people with pancreatic cancer to participate in a national survey.

Results: The mixed media approach was successful in reaching a large and representative population of people with pancreatic cancer, reflected in survey completions. It was found that social media platforms were markedly more efficient and cost-effective than radio and newspaper, but required access to specific skills such as graphic design and communication strategy knowledge.

Conclusions: Social media is an effective and efficient method of recruiting people with pancreatic cancer to a national survey. Recruitment utilising this methodology engaged with populations traditionally difficult to reach such as Indigenous people groups. Expertise in graphic design and marketing/communications are recommended to create this type of study.

Presenters

Authors

Authors

Dr Amanda Landers - University of Otago , Dr Charlotte Cahill - Te Whatu Ora Waitaha , Ms Anu Kaw - University of Otago , Ms Helen Brown - Nurse Maude Association , Ms Clare McKenzie - Nurse Maude Association , Prof Meera Agar - University of Technology, Sydney , Ms Vanessa Yenson - University of Technology, Sydney , Dr Kate Clarke - Te Whatu Ora Wellington , Prof John Windsor - University of Auckland

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