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Presentation Description
Institution: Queensland University of Technology - Queensland, Australia
Background
There is a global need for improvements in palliative care within the hospital setting. Patient Reported Experience Measures (PREMs) capture patient and family perspectives on which aspects of care require improving by a given service.
Aim
To identify and describe PREMs designed for hospitalised patients with palliative care needs and their families, and their alignment with patient and family priorities for high quality care identified by previous research.
Methods
A systematic review using data sourced from CINAHL, Medline and PsycInfo up to September 23, 2022, supplemented by handsearching article reference lists and internet searches. PREMs written in English and designed for hospitalised patients with palliative care needs or their families were eligible. Included PREMs were described by: summarising key characteristics; and mapping their items to patient/family priorities. Reading grade and evidence for psychometric properties were reviewed, with ≤ Grade 8 recommended.
Results
Forty-four PREMs with 827 items were included. Items per PREM varied from 2 to 85 (median 25, IQR 13-42). Two-thirds (n=534, 65%) of the items were designed for families and a third (n=283, 34%) for hospitalised patients, and very few (n=10, 1%) for both. Sixty-six percent of items measured person-centred care, 30% expert care, and 4% environmental aspects of care. Available PREMs address between 1 and 11 of the 14 domains of importance for quality palliative care. PREMs had a median of 38% (IQR 25.4-56.3) of items >Grade 8.
Conclusions
Whilst 44 PREMs are available for hospitalised patients with palliative care needs or their families, they disproportionately focus on certain domains of care. Few are suitable for people with lower levels of literacy or limited cognitive capacity due to illness.
Presenters
Authors
Authors
Dr Claudia Virdun - Senior Research Fellow, Faculty of Health, Queensland University of Technology; Honorary Fellow, Improving Palliative, Aged and Chronic Care through Clinical Research and Translation (IMPACCT), Faculty of Health, University of Technology Sydney (UTS); , Ms Maja Garcia - Research assistant, Faculty of Health, IMPACCT, UTS. , Professor Jane Phillips - Head, School of Nursing, Faculty of Health, Queensland University of Technology; Emeritus Professor Palliative Nursing, IMPACCT, Faculty of Health, UTS. , Dr Tim Luckett - Senior Lecturer, IMPACCT, Faculty of Health, UTS;
