Program Agenda View
Welcome and conference overview
Acknowledgement of Country
Dr Hsien Seow, Canada
Canada Research Chair in Palliative Care and Health System Innovation and an Associate Professor in the Department of Oncology, McMaster University in Ontario, Canada
KPMG’s Investing to Save – Palliative Care report highlighted the strong return on investment that Australia’s world class palliative care sector delivers. But what else is needed to secure increased funding of palliative care? Where do information gaps challenge the sector and hold us back from more informed decision-making? What change is required to help us meet our vision for the future? This session will highlight the good news story of the initial Investing to Save analysis; present some challenges identified in our new report: Information gaps in Australia’s palliative care; and provide a Q+A forum for getting your views and input to help advocate for change.
The session aims to discuss how to meet the growing palliative care demands of Australia’s ageing population by ensuring that palliative care is recognised as core business in aged care, how to best meet the findings of the Royal Commission into Aged Care Quality and Safety and ensure that aged care providers and staff are supported through appropriate systems, funding and training.
Invited Guest Speaker;
- Josh Cohen (Chair): Palliative Care Nurse Practitioner, Calvary Health Care Kogarah
- Professor Melanie Lovell: Senior Academic, Centre for Learning & Research in Palliative Care, Hammond Care
- Professor Deborah Parker: Professor of Aged Care & Dementia Nursing, University of Technology Sydney / Cheif Investigator, ELDAC
- Peter Jenkin: Palliative Care Nurse Practitioner, Resthaven
- Patricia Sparrow: Chief Executive Officer, Aged & Community Services Australia
- Prof Liz Reymond: Director, Brisbane South Palliative Care Collaborative (BSPCC)
Regardless of aetiology, dyspnoea is one of the most common symptoms reported by patients with advanced disease who are nearing the end of life. Because of the complex ventilatory, biochemical and psychological causes, dyspnoea presents a challenging symptom to manage in this group of patients. Dyspnoea or breathlessness is largely a subjective symptom and difficult to quantify, but despite this, the symptom can be overwhelming for patients. It may range from feeling uncomfortable and aware of their breathing, associated with physical exertion, or through to a highly anxious and fearful experience at rest. This may be further exacerbated as breathless patients withdraw from family and friends by limiting conversations, activities and social interactions as a result of their continual fight to breathe.
Paediatric Palliative Care Australia and New Zealand
One of the characteristic features of children’s palliative care is prognostic uncertainty. Many of the illnesses encountered progress in ways that can be difficult to predict and while welcome, therapeutic innovations add further to the uncertainty. Even the most experienced clinicians struggle to know if and when any given child’s condition might deteriorate. This makes decision-making challenging. When should this child be referred to a specialist palliative care service? What interventions are and are not in their best interest? The answers to these questions may be viewed differently by different clinicians depending on their values, experience and belief systems. Added to this are the emotional responses that clinicians can experience. Grief, guilt and a desire to ‘fix’ problems can all influence how clinicians think and act.
Providing palliative care to children with life-limiting conditions requires sophisticated team work both within the specialist palliative care team itself and between the multitude of teams often involved. The diagnostic diversity encountered in this area means that specialist paediatric palliative care providers must work with multidisciplinary teams from a range of paediatric specialties such as neurology, oncology, neonatology and cardiology. There is the added complexity of working with clinicians from community palliative care, disability, education and general practice. All of these teams will have their own value systems, world views and philosophies of practice.
All of these factors create an environment in which conflict can arise. In turn, conflict can impact negatively on patient care and lead to moral distress and burnout for clinicians.
This workshop will explore what drives conflict between individual health professionals and teams and offers participants an opportunity to learn new skills in working through ethical dilemmas, moral distress and conflict.
While the workshop will explore intra- and inter-team conflict in the paediatric setting, the strategies discussed will have broader application across palliative care.
Aims and Objectives
- To better understand the drivers of conflict between health professionals and teams
- To examine some of the more commonly encountered ethical dilemmas and potential approaches to thinking these through
- To better understand the origins and manifestations of moral distress
- To explore strategies for resolving conflict Key Learnings
- Recognition of the factors that drive conflict
- Approaches to ethical dilemmas
- Approaches to managing moral distress
- Basic skills in mediating disputes between individuals and teams
Distinguished Professor Patsy Yates, AM, PhD, RN, FACN, FAAN is the Executive Dean of the Faculty of Health, Queensland University of Technology (QUT). Patsy is a Registered Nurse with extensive experience as a leader in education and research in the health sector. Prior to her appointment as Executive Dean in 2020, Patsy was Professor and Head of the School of Nursing at QUT.
Patsy is also a Co-Director for QUT’s Centre for Healthcare Transformation. She leads a large competitively-funded research program focused on developing workforce capacity in cancer, palliative and aged care, advancing the management of cancer-related symptoms and treatment side effects, and strengthening the nexus between research, policy and practice in cancer, palliative and aged care.
She holds visiting appointments as Lead Researcher for the Cancer Nursing Professorial Precinct at Royal Brisbane and Women’s Hospital, Director for Queensland Health’s statewide Centre for Palliative Care Research and Education, and Visiting Fellow at Princess Alexandra Hospital. She is also a Senior Fellow of the Centre for Health Outcomes and Policy Research, University of Pennsylvania.
Patsy is a Fellow of the American Academy of Nursing and the Australian College of Nursing. She has been inducted into the International Nurse Researcher Hall of Fame of Sigma Theta Tau International Honour Society of Nursing and was awarded the prestigious USA Oncology Nursing Society Distinguished Researcher Award in 2018. She has also received a Citation from the Australian Learning and Teaching Council for Outstanding Contribution to Student Learning.
Patsy is the current President of the International Society of Nurses in Cancer Care and a past-President of Palliative Care Australia.